In this video, grandmother Sheila recounts her haemophilia diagnosis and shares her hopes for her daughter and granddaughter.

You'll also hear from Nicola, Sheila's daughter, and Tegan her granddaughter, who both share their own stories of life with haemophilia, including starting and managing periods, the risk and fear of injury, the importance of preparation around pregnancy and childbirth, challenges receiving medical care and finding support within the community. 

Use with patients in your clinical practice, share the full video or skip to a selected clip below.


Subtitles in English, French, German, Spanish and Japanese are available by clicking on ‘CC’ within the video controls

 

Clinical Takeaways

 

  1. Contrary to common belief, bleeding disorders do occur in women and girls, and have a major impact on their quality of life

  2. It is important to have an individual medical care plan in place for both children and adults with bleeding disorders to advise on care at school, in work, during pregnancy, for surgery, or in an emergency

  3. Ensure women and girls with bleeding disorders are aware that support is available through patient organisations

 

Don't have time to watch the whole video? Jump to the selected highlights below: 

  • Diagnosis
  • Medical Care
  • Periods
  • Pregnancy
  • Support

Subtitles in other languages coming soon

This video is endorsed by:

                                                              

 

Raising awareness of bleeding disorders in women and girls as part of World Hemophilia Day 2023

Dr Sarah O’Brien is Associate Professor of Pediatrics at The Ohio State University College of Medicine.  She leads a multi-disciplinary young women’s hematology clinic at Nationwide Children’s Hospital.  Her clinical and research interests include the evaluation and diagnosis of mild bleeding disorders and the intersections between hematology and women’s health. 

Dr Sarah O'Brien has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Bristol Myers Squibb. 

Debra Pollard is Lead Nurse Specialist, Advanced Nurse Practitioner at Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free Hospital, London, UK. Debra is also Director of Education at Haemnet, a member of the European Haemophilia Consortium’s Medical and Scientific Advisory Group, the UK’s Haemophilia Society as well a member of the Women and Bleeding Disorders Working Group of the EAHAD.

Debra Pollard has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

BioMarin, CSL Behring, Novo Nordisk, Roche-Chugai, Sobi and Takeda. 

Homa K. Ahmadzia, MD/MPH is a Maternal-Fetal Medicine specialist and Assistant Professor in the Department of Obstetrics and Gynecology. Dr Ahmadzia completed her undergraduate, medical school education, and Masters of Public Health at The George Washington University. She then completed her residency at Yale University where she was awarded the Outstanding Resident Teaching Award in both her second and third year of residency and also served as Administrative Chief resident. She completed her fellowship in Maternal-Fetal Medicine at Duke University.

Dr Ahmadzia has presented her research at numerous national and regional conferences including the American Institute of Ultrasound in Medicine, The Society for Maternal Fetal Medicine and The American Congress for Obstetricians and Gynecologists. She received the Charles B. Hammond Fund research award to fund her fellowship thesis project. She also attended the Excellence in Clinical Research course and NICHD Young Investigators Conference. During fellowship, she served on the Society of Maternal Fetal Medicine Global Health Committee. She has previously received the Clinical and Translational Science Institute KL2 Mentored Career Development Award through the GW-CNMC partnership with NIH and currently on a K23 Career Mentored Development Award from NHLBI. She has a specific clinic for Pregnancy and Hematology issues at GW. She also has other grant funded research from the FDA and Gates foundation as well as serves as the Medical Monitor for the Maternal-Fetal Medicine Unit Network.

Dr Ahmadzia’s clinical areas of interest include prenatal diagnosis, ultrasonography, management of high risk pregnancies, bleeding disorders and thrombophilias, preconception counseling and infectious diseases. She enjoys taking care of women during pregnancy and hopes to improve perinatal outcomes for women in the US and abroad through her clinical and research interests.

Dr. Homa K. Ahmadzia has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Coagulant Therapeutics, Haemosonics

Supporter Acknowledgement
This educational programme is supported by an Independent Educational Grant from Takeda
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HEMOSTASIS CONNECT

HEMOSTASIS CONNECT is an initiative of COR2ED, supported by an Independent Educational Grant from Takeda and Viatris.

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