Oncology Rare diseases Podcast

Neuroendocrine tumours (NETs) shared decision-making: Exploring the patient journey and individualising treatments

Publication Date

Jul 2024

In the first of this two-part podcast series, gastroenterologist Dr Mohid Khan and NET patient advocate Sally Jenkins explore the patient and physician perspectives of shared decision-making and how both parties can contribute to optimising consultations.

In the second of this two-part podcast series, gastroenterologist Dr Mohid Khan and NET patient advocate Sally Jenkins explore NET shared decision-making in the context of individualising treatment decisions.

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During the discussion, they draw on their own experiences, giving an insight into best practices and key considerations. Conversation topics include:

The importance of communication and collaboration during consultations
Practical tips on how to make a patient feel as comfortable and in control as possible
What makes a good consultation, from the perspectives of both a patient and a physician
The importance of support networks, individualising treatment, and the impact of NET and NET treatment options in daily life

Clinical takeaways

Considering patient perspectives allows patients to feel listened to, more relaxed, and in control
Tailor consultations to individual patient preferences
Evidence suggests that patients prefer treatment injections at home to hospital visits, however, it is important to ensure treatment is individualised

Educational objectives

Highlight the value of shared decision-making in NET management

After graduating from Imperial College, London, Dr Khan completed higher specialist training in Gastroenterology and Internal Medicine in London including Imperial, University College London, Royal Free and Royal Marsden Hospitals. He was awarded a PhD for his research in NETs whilst at the Royal Free/UCL, achieving numerous publications and national/international awards. After a fellowship in Gastrointestinal consequences of cancer at the Royal Marsden, he moved to Cardiff and was appointed as a Consultant Gastroenterologist in 2014 at Cardiff & Vale University Health Board.

Since 2017, he has successfully led the multi-award-winning transformation of the nationally commissioned Neuroendocrine Cancer service in South Wales. Working through a patient-centred approach, the service has won the UK Patient Experience Network Award and were finalists for BMJ Cancer Team of the Year. It achieved accreditation as a European NET Centre of Excellence in 2022.

Academically, Dr Khan has various Chief and Principal Investigator roles, with research interests in patient outcomes, NETs, service improvement, and real-world data. He has been involved in digital health projects and currently has leadership roles in the digital transformation of healthcare at local and national levels. Through a range of projects and roles with the British Medical Association and Welsh Government, he champions staff wellbeing, equality, diversity and inclusion, in particular, race equality.

Sally is a semi-retired university lecturer living in South Wales. Since being diagnosed with a neuroendocrine tumour in 2009, Sally has experienced many consultations with different clinicians over the years. Sally believes it is an absolute necessity for all NET patients to have access to a specialist NET service. She also feels patient support is crucial for patients living with NETs and has been involved in patient groups and advocacy for many years.